Undergoing genetic testing for diagnostic purposes can be a stressful process filled with questions and uncertainty. Dr. Young’s research aims to shed light on some of the challenges that families face regarding communication of genetic illness, coping with a diagnosis, and decision making in the light of unclear information.
WATCH a video recording of a panel discussion about the mental health needs of people and families living with a rare disease.
LISTEN to a podcast Dr. Young did with Adam Johnson a #DadVocate for rare disease. The podcast discusses de-stigmatizing mental health services, family communication in the context of rare disease, and what resources are available for people seeking therapy.
Mental Health Resources
Dr. Young frequently receive questions about what mental health resources are available for people who have recently received a genetic diagnosis, are struggling to communicate with their family about genetic information, have questions about child adjustment, or are grieving the loss of a family member or their own change in health status.
Below are some resources that Dr. Young recommends for anyone seeking professional mental health support: