Media & Talks
DSCC Partners in Research Study to Improve Home Health Care for Children
“SafeCare@Home4Kids” aims to understand and prevent safety issues at home for children with medical complexity
CYSHCNet Researcher Receives Funding to Improve Healthcare at Home for Children
Agency for Healthcare Research and Quality (AHRQ) Awards $2 Million to fund “The SafeCare@Home4Kids Learning Lab: Designing Safer Healthcare at Home for Children”
Fortune: For moms of kids with special needs, career survival may entail a radical pivot
Parenting special-needs children poses a daunting challenge to ambitious professionals- especially women. For these two moms, that challenge was transformative.
The New York Times: To Keep Their Son Alive, They Sleep in Shifts. And Hope a Nurse Shows Up.
A nursing shortage — driven by the pandemic — has made life miserable for parents with profoundly disabled children. “What if I’m so exhausted that I make a mistake?”
Pediatrics on call podcast
In this episode Carolyn Foster, MD, MSHS, FAAP, shares the latest research on how technology and remote patient monitoring are improving health outcomes. Hosts David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also talk to H. Shonna Yin, MD, MSc, FAAP, about the new AAP policy statement, Preventing Home Medication Administration Errors. For resources go to aap.org/podcast.
Supporting Children with Disabilities: Lessons from the Pandemic, A Workshop
The National Academies of Sciences, Engineering, and Medicine conducted this workshop as part of a 3-day, virtual open workshop on the impact of the COVID-19 pandemic on children with disabilities and their families
U.S. News & World Report: Leaving Work to Care for Special Needs Child Takes Big Financial Toll
Having a special needs child can mean medical emergencies and doctors’ visits where parents have to take time off from work, and now a new study shows that can bring a bit financial hit to a family.
The Next Steps to Improving Home Health Care for Children with Medical Complexity
Guided by Home Health Care for Children with Medical Complexity: Workforce Gaps, Policy, and Future Directions, this engaging discussion on family needs for home health care and potential workforce and policy solutions featured the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.
Return to School for Youth with Special Healthcare Needs (COVID-19).
The decisions of schools and daycares to hold in-person learning – versus other alternatives – will appropriately be related to their own decision-making regarding their local circumstances and resources. The decision of families with youth with special healthcare needs as to how their child will participate in their education is a personal and individual decision-making process as well. The following are some questions to help families with this decision.
What Happens When Caregivers Get Sick? Preparations During COVID-19 and Beyond
Parents and caregivers of children with medical complexity often focus solely on their child’s health and wellbeing. But what happens when the parent/caregiver gets sick?
It’s a crucial question that families must consider.
PEDIATRIC HOME CARE NURSE SHORTAGE CAUSES FAMILY HARDSHIPS
Inadequate pay and training are major drivers of a national shortage of pediatric home care nurses, experts from Ann & Robert H. Lurie Children’s Hospital of Chicago say in an article published in the June issue of Health Affairs.
Navigating the Intersection Between Medical Complexity and Mental Health in the Emergency Department
In this Complex Care Journal Club podcast episode, Dr. Sriram Ramgopal and Dr. Carolyn Foster discuss the design and key findings of a cross-sectional study examining encounters in the Emergency Department and subsequent care for children with medical complexity and mental or behavioral health needs. They describe gaps in our knowledge and systems issues related to this important intersection of care needs, implications for clinical practice, and next steps from this work.
Children with disabilities face additional challenges returning to school amid coronavirus
While the decision to send children back to school weighs heavily on all parents, families of children with intellectual, physical and developmental disabilities are facing unique challenges and considerations.
CBS Interview about the Home Health Care Crisis
This news piece by CBS discusses the home health care crisis. This piece includes an interview with Dr. Carolyn Foster, in which Dr. Foster discusses potential solutions for the crisis.
